Tag Archives: dementia

Illustrator contributes his talent for children with cancer!

There’s always something, isn’t there? 🙂  I finally finished the book I was reading and was going to get a review ready when I discovered I’d lost my internet connection. Repairs were being done on the tower after something went wrong following the weekend’s stormy weather, I was told. When all was restored I didn’t get back to my computer at a decent time to prepare the review.

I am scheduling this post for Thursday morning. Since on that day I am going to be participating in a Dementia Strategy in the city (an hour away) I’m not staying up late tonight (Wednesday) to work on my review. I’m very tired, trying to stay ahead of depression and not doing very well at it, and making myself go to some things so I don’t crawl under a rock to hide. (I’d really rather hide.) Besides that, October 30 is my husband’s and my anniversary, so we are meeting after the strategy and his work day to go out to dinner somewhere before coming back home.

What I decided to do instead of working on a book review is share a post the wonderful Tara Lazar has on her blog. (She wants it shared; I don’t just copy other people’s posts.) Tara is the creator of PiBoIdMo which I’m happy to be participating in again –  with the hope it helps me keep going and thinking creative thoughts.

The post is about an illustrator who is contributing his talent to help children with cancer. Please go HERE to read about it. It’s really inspiring. There’s even opportunity for you to help if you are so moved.

While you’re on Tara’s blog, take a look at the PiBoIdMo page. Sign up if you want, there’s still time to get in on the fun if you’re reading this before November 8th. If you don’t want to register you can still benefit from the posts but you can’t participate in draws to win neat writers’ stuff or join the FaceBook group — if you’re on FB — which I’m not — so I miss out. (I seem to miss lots of stuff because of that. *sigh*)

As I was saying, check out Tara’s guest – Illustrator Steve Barr. You’ll be impressed, and you get a drawing lesson, too! 

Do you draw or want to learn? (I want to learn!)  Are you taking part in Picture Book Idea Month in November? (You are? Me too! 🙂 )

Thanks for reading, and … Creative Musings!  🙂

 

 

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Instead of a book review

Hello, everyone!

Today is supposed to be a book review day but, as you can see, this is not one. I’m sorry, I just haven’t managed to get one written yet. My apologies for not even getting a post up over the week-end.

It was an exhausting week for me with spending so much of it with Dad in hospital. He was admitted Monday evening when they determined he had suffered a heart attack. In the morning he was moved to ICU even though he didn’t really need to be there, but it was really God’s blessing because of his state of mind and the excellent attentive nursing care he needed and received. Most of the time he didn’t seem to understand for long where he was. He thought he was home or in another hospital which would have been where he was if he were still living where he grew up. The heart attack really served to add to his confusion, so it was difficult when he became agitated.

What we learned through all of this is that we are losing our dad more quickly now as certain things are not working well anymore. It is a waiting game, not within an expected amount of time as it was with our dear Mum, but time is shortened. As his daughters, my sister and I have much to be thankful for and much to deal with yet, but we have very good support in place and we have each other. Teamwork counts a great deal in this.

What I learned is that God’s provision comes in many ways, usually without our realizing it in the moment, and in such a loving fatherly way. Also, on another track, I learned through our recent experience more about how totally fascinating the brain is — and if I were younger I would want to make that my advanced study and learn more about dementia and how to treat it or even prevent it. How much I want to know! How much there is to know!

Now I wish to thank you for faithfully checking in to read my book reviews and other posts. You make blogging enjoyable for me, and it helps to keep me writing. Please remember to visit my BUY THE BOOK page when you are looking for a book to read as there are many good ones listed there that I’ve reviewed, and check out my Writers’ Helps page for helpful links and fun things to do, not only for writers.

I will get into my reading and writing again, and a new book review will be up soon. Thank you for your patience.

I have two questions for you today:

  1. Have you learned something helpful during time of crisis?
  2. If you could study something that would be of benefit to mankind what would it be?

PS:  I just realized I failed to mention Dad was released from hospital Friday afternoon. He is doing well enough they said it would be okay but we keep the nitro spray handy and continue on as we were. He is more content in his own home and sleeping better at night. Not having to remain in bed or in one room works so much better for him.

Thanks for reading, and … Creative Musings!  🙂

 

 

 

Important info about Alzheimer’s research! My rant

I’m on a rant! Please indulge me.

As you know, Alzheimer’s disease (one high-profile aspect of dementia) has invaded my family and taken over a major part of my life. Today I have very important information to share with you.

Before you read further, I would like it if you would take this Alzheimer’s quizRight click on the link so you don’t lose your place here.

Much research is being conducted to learn how to prevent, slow, predict Alzheimer’s disease, but study of the actual brain of Alzheimer’s patients cannot be done until after death. I recently learned that the main focus of study is of the male brain because it is easier to work with due to the female brain being more complicated due to hormonal changes and differences. This means that drugs formulated to help Alzheimer’s patients are geared more to the male brain! This is shocking since more women are afflicted by Alzheimer’s disease than are men! Now, does that make sense to you?

I don’t know about you, but that does not sit well with me. Alzheimer’s is following the generations in my family and I for one do not want to have to rely on ill-targeted studies and drugs should it come to that for myself or any other woman in my family.

There are not many causes I believe in enough to commit to support, but Alzheimer’s research is one in which definite strides are being made and support is not misused. In fact, Nova Scotia is a leading force in research and progressive work in learning about this disease. I’m proud of that fact. I also see the huge and urgent need of continued research for breakthroughs. I truly believe that for the generation of my own offspring there will be discoveries made to determine very early if an individual has the actual disease and then stop it from progressing further, thus saving the individual from the horrible regression due to a deteriorating brain. Although now there is a blood test that can reveal if a person has the gene, at present the drugs we have, at best, sometimes slow the progression but cannot stop it. 

I wish I were a scientific genius who could come up with the answers to save so many lives from the agonies of Alzheimer’s disease. There is so very much we don’t know about it … what causes it, what triggers it to start, how to stop it, how to prevent it, how to cure it. There are guesses, lots of those, and there are studies which have found diet has a lot to do with trying to fend it off – foods that make a positive difference for the brain (coconut oil being emphasized now) – but when one is in a family stalked and oppressed by Alzheimer’s that is not enough.  Answers, helps, a cure, PLEASE!

I found a website I would like you to visit. It is called Hope Knot. The name comes from the Hope-Knot project – to combat women’s brain aging disorders. A beautiful design was created by a renowned jewellery designer whose family has experienced the devastating effects of dementia. He explains the inspiration for the design, which I hope you will go HERE to check out for yourself.  Here is what is said on the site: The Women’s Brain Health Initiative wanted an icon to raise awareness and escalate concern over the unchecked growth of dementia and other aging brain diseases in women.

Here is additional good information about Alzheimer’s.

There is more I could say but for now I will simply thank you for permitting me this rant. You can see it is a cause I believe in. I urge you to please visit the website, and if so inclined, make a purchase of that beautiful jewellery to support the effort and honour the many women afflicted – or who will be afflicted – with brain disease. I did.

If you took the Alzheimer’s quiz what were your results? I missed one.

There is talk of a blood test now that will reveal if someone has the Alzheimer’s gene. If given the chance, would you want to know ahead or would you prefer to wait (if you have it) until it is obvious? If you knew ahead, would it change your life?

Thanks for reading, and … Creative Musings!  🙂

PS:  From the Hope-Knot website:  Almost 70% of new Alzheimer’s sufferers will be women. What makes this fact even more alarming is that there is little understanding of why this is the case, and there are no studies currently being undertaken to explore the discrepancy. We at the Women’s Brain Health Initiative intend to change that.

 

 

Book Review: Adventures in Mother-Sitting – by Doreen Cox

Adventures in Mother-Sitting by Doreen CoxBook: Adventures in Mother Sitting
Author: Doreen Cox
Publisher: Olmstead Publishing
Date: January 1, 2010
Genre: Memoir (adult reading)
Pages: 266
Price: $18.00; Kindle under $6.00
My Rating:  A good book for anyone caring for a loved one with dementia

* from the book blurb: ADVENTURES IN MOTHER-SITTING is a memoir that speaks to a journey through grief, through losses of many kinds.

I read this book with the intention of reviewing it, especially since I also am a caregiver of a loved one.

Adventures in Mother Sitting is a book written by the daughter of a woman with Alzheimer’s disease. Doreen Cox wrote from raw and real emotions and experiences. She took the reader through her journey, preserved in journals, in a way that draws the reader into her life, and into her home which she shared with her mother for whom she became a “care bear”.

Three things that stood out to me in a less positive way are:  1. I have never read anything where the author used quotation marks as freely as in this book.  2. It felt as if chapters 11 and 12 yanked me right out of the story and were not necessary.  3. Some repetition seemed unneeded as the reader can understand what was said and will likely remember most of it from before when encountering things that relate back.

Now, that out of the way, the great things about this book are the honesty with which the author wrote and her willingness to share it all. She told in great detail, some parts difficult to read because of the exposed reality of the disease, about how Alzheimer’s (dementia) steals from its victim. Not only are memories stolen, but the memory of how to do even the simplest things disappears. The brain is confused and damaged by the disease, affected in such a way so as to make it stop relaying the usual messages we all take for granted, such as how to eat, dress, carry on a conversation. There is so much to learn about Alzheimer’s, so much to understand in caring for someone afflicted. Doreen opens a window into seeing what it is like living with that horrible disease, and how acutely needed are love, compassion, patience, understanding.  She also bravely shared how it sometimes became too much for her when she was sleep deprived and exhausted, and how she coped – or failed to cope – with the demands on her.

Adventures in Mother Sitting is told with humour, love, and tenderness, but also with a sometimes shocking truth. It is raw, revealing, and perhaps awkward for some people to read, but it should be read anyway.

Two years ago I wrote a review of Still Alice  – a fiction novel about a woman who learned she had Alzheimer’s, and covers two years of her life as the disease gradually takes over her brain’s ability to function. It is a book highly recommended among caregivers of Alzheimer’s patients, and during our Alzheimer Caregiver Support Group meeting this month I recommended Adventures in Mother Sitting by Doreen Cox.

If you are facing dementia in any way, particularly as a caregiver of someone so afflicted, I suggest you read this book. It will help you to understand more from the viewpoint of the caregiver, enabling you to see from the author’s experience how the disease changes a person’s abilities and mind to that of total dependence.

You can find Adventures in Mother Sitting listed on my BUY THE BOOK! page.

Thanks for reading, and … Creative Musings!  🙂

 

 

You Tube video: cycle of life

Hello everyone!

You may have noticed that it’s been three weeks since I last posted here. For me to explain ‘why’ seems pointless, so I will just say that sometimes – for the sake of my own mental health – I just need to pull away from some things for awhile and do something else … or nothing. During this time I hope that you are finding information here – especially on my writers’ helps and workshops pages – when you need it. 

Be sure to bookmark my blog and sign up to receive notice of when new posts have gone live; you won’t want to miss Sue Harrison’s writers workshop each month. We are not sure yet if she will have to take a break for summer, but keep checking in for updates. Next installment is soon.

Awhile ago I watched this You Tube video called cycle of life and thought you might find it interesting, moving, thought-provoking. Please let me know —  what do you think of it? how did it affect you? can you relate to its message in some way?

I hope all is going well in your life.  Sending hugs your way …

Thanks for reading, and … Creative Musings!  🙂