Tag Archives: Alzheimer’s

A B C’s: Alzheimer’s, Blogging, Cancer?

I have been missing in action again. Well, not really missing, but absent from blogging. It was not intentional. I just need sleep, I think.

Since NaNoWriMo ended I have been trying to do a little catch up on other things. This is my week home from caregiving (Alzheimer’s) and even though I have had some time, I’m finding it hard to accomplish much extra. My blogging has suffered (again!), and for that I apologize to you, my readers.  My stress level is climbing and I’m quite tired, but Christmas is coming and I have to get busy!

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The added stress is that recently my dear husband was diagnosed with level 2 melanoma, skin cancer. (I had to pause before typing out that hated word.) My husband told me he doesn’t care if I talk about it here; he says many people know anyway, and it is what it is and will likely become obvious. I am sharing this information in the hope that Believers will pray for him. He has had one minor surgery, and on December 18 he will be undergoing a more involved one. After that one and before doing reconstructive surgery the surgeon will be searching for lymph nodes in order to remove some for testing. This all will happen within six hours on the same day. Test results are to come back four weeks later.

That happens to be my week at Dad’s, so I am working out details to have someone there in my place while I am with my husband for two days. Once he is doing okay then I’m back to Dad’s for the rest of the week. Plus, it’s going to be crazy trying to get everything ready for Christmas during all this. We have been attempting to get our shopping completed in preparation, and I got my ‘away’ gifts all mailed yesterday.

A fun thing for me is that on Saturday I met a new author who is a bit of a celebrity. She signed her book for me and after I finish reading it I will be doing a review here .. after the others I have lined up.

** If I told you I would read and review your book, please send me a quick email and remind me. I must have misplaced my list (can’t imagine how!) and really have to get a better system together. I hope you understand it’s been difficult to get into reading and reviewing lately. There are some exciting books lined up for me to review, though, and a couple of giveaways are included. Please stay tuned! :)

I cannot end this post without saying that in the long line of people waiting for the signing of books on Saturday, three people behind me was none other than the lovely and talented author Laura Best! Remember my review of her book Bitter, Sweet and our interview? We had a chance to chat a little which was enjoyable for me, with comedy added since her husband was her “professional photographer” and quite a kidder.

I suppose most of this reads like a “woe is me” post. Admittedly, I’m feeling rather blue right now, but after a good sleep things should look a little better. Truly, I rely on the Lord although it may not seem like it right now. My human nature is to look at the situation and then have to remind myself to look to the One who knows all. One of my life verses is Romans 2:28: And we know that all things work together for good to those who love God, to those who are the called according to His purpose.

I hope you are not stressing, but if you find life to be overwhelming … look to the One who knows all. :)

Thanks for reading, and … Creative Musings!  :)

 

 

 

 

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When is a writer not a writer? (pity party alert)

My apologies right off the top for a dreary post.

My question is: When is a writer not a writer?  No, this is not a riddle. Then maybe again it is … but I have no real answer for it. Maybe you do?

I’m tired. No, let me say that again … I’m so tired.

And I don’t feel particularly creative. My well is low – on motivation, energy, inspiration, ideas, stamina. Maybe it’s because I’m tired. And a little discouraged. And feeling a bit forgotten. Now, is that a great menu for a pity party, or what!

My creative well is rather plugged up with stuff, such as – lack of quality sleep (aware all the time while “on duty”, then at home it’s hard to relax from that), caregiving concerns (situation is getting more involved as Alzheimer’s gets worse), always trying to balance two households (but not knowing enough about my own anymore)

physical pain (more since I had a fall a week ago, so add to the list an x-ray tomorrow AM), seeming to be invisible when it comes to the fellowship I was part of (probably “out of sight out of mind” because I seldom get there now), not having much interaction with writers (really need an ‘anytime chat’ place), needing a vacation (every second week at my own home is not a vacation), missing the ocean (my healing place), I have books to read and reviews to write (love doing both, time is a factor), I’m WAY behind in my emails and blog (many other demands and concerns),

and –

I hate that I sound like such a whiner!

Of course, my sister also has her own set of life stuff going on along with our caregiving commitment. It’s always interesting!

Okay, I need a hug. Where is my grandson when I need him?

There must be an up side to all this. Yes, of course there is.

  • 1. Our loved one gets to stay in his own home for as long as we can help him.
  • 2. We get the privilege of honouring him through giving of our time for him.
  • 3. My sister and I are learning as we go while also learning to work together to make a stressful situation workable.
  • 4.  We have fibre optics here! ;)
  • 5. …  hmm     5. … ?

I’m sure there’s more to add but right now I can’t think of it. (Was that you I heard say, “Good!”) This has been a writing exercise for me if nothing else, and hopefully my next post will be more upbeat after the tropical storm and hurricane pass tonight and tomorrow.

By the way, I don’t believe it’s writer’s block that’s got me in this place, it’s weariness and life stuff. Otherwise I could take some tips from my own Writer’s Helps page. :)

In the meantime, can you answer my question? When is a writer not a writer? What do you do when you not only can’t come up with ideas but you hardly are interested in trying?

Thanks for reading, and … Creative Musings!  :)

 

When Sorrow Weighs You Down (warning: deals with death)

Warning: this is a sad post and deals with death. It is not the post I had in mind for today.

Please .. no more bad, sad news. Enough.

It seems every time someone calls with news this year it is sad.

Actually it started in November of last year when a wonderful friend, Linda, passed away quietly in her sleep. She was in a nursing home for the care needed because of her illnesses. She was only 60.

On the very first day of January this year, Cynthia, an elderly friend, passed away. She had Alzheimer’s, was in hospital after suffering a broken hip, and did not recover. Added to her husband’s pain, near the end of that month, their son James contracted Meningitis. All efforts failed to save him and he passed away in hospital.

News of two other deaths came this week. The husband of an acquaintance was found, having died suddenly, the cause yet to be determined. Then on February 1, the best friend of the boyfriend of one of my daughters came home and found his young wife had passed away unexpectedly due to a medical problem. He is left to raise their two small children.

All of those are so heart-wrenching, but what has personally hit me the hardest is the news I received this morning. Ruby, a long-time friend and my husband’s cousin, passed away this morning. She was a cancer survivor but the treatments seven years ago seriously damaged her heart so when more cancer was discovered in December there was nothing that could safely be done for her this time. She chose to not try it. Hardly out of her fifties, her spirit departed this life and her loved ones a few hours ago.

My heart is heavy. I have cried many tears, grief sweeps over me in waves. But even though I sorrow it is not without hope. I am reminded of the Scripture verse 1 Thessalonians 4:13 that says in part, “that you may not grieve as others do who have no hope.” I know for a fact that three I mentioned above knew the Lord Jesus, the others I cannot say for sure. But families and friends can find their comfort in the Lord, and will carry on – even with heavy hearts.

If you are a Believer I know your prayers would be appreciated for the spouses, families, and friends of the ones I mentioned – for comfort and strength. It’s a rough beginning to this year and a long road ahead.

If you yourself are facing difficulties .. be encouraged. There is One who knows and is ever-present and waiting to walk through them with you.

Life changes, brings circumstances that sometimes we wish we never had to face, but life still goes on. It is our choice what to do with the short time we have.

On the flip side there are exciting surprises and situations that come into our life path, things that make us dance or sing or jump up and down. And, I have found, that even when death comes .. for the one who has hope there is reason to rejoice.

Do you have any experiences that you would like to tell us of God’s comfort?

If you know of any books for children on this topic of death, mourning, grief, please let me know by leaving a comment. Thank you.

Thanks for reading, and … Creative Musings! :)

 

 

 

 

Learning how to split in half and still keep one’s sanity

Wow! Time is certainly travelling along, isn’t it? It has been too long since my last post, so I will try to remedy that.

My life has been split in half. So has my sister’s. Therefore, so have our husbands’ and all else connected to our private existence.

Life has changed a lot, being a full-time part-time caregiver has affected my life drastically. With my sister, I am alternating weeks living with our dad (which makes it part-time), but we are going to be doing this for … who knows how long? (which makes it full-time) Even when I’m not on my ‘shift’ I’m still sort of on-call – if my sister phones and needs support or information or whatever. She does the same for me. That’s how we have it set up for each other and so far it is working out.

Recently, we were approved for a few hours respite each week, which is a blessing. A huge blessing. We were getting very weary, it’s a mental thing — always having to be alert to where, what, when — so getting a break is an assist to retaining sanity. Respite is so new to us that it is taking a little time to work out the glitches, and I find it hard turning things over to someone else even for a few hours. But, don’t get me wrong, I appreciate it and need it.

Can anyone relate to any of what I’m sharing?

When I get home from my week on duty, I lose at least one day from total weariness. Being on constant alert mode is exhausting, and even feeling tired there it really hits when getting home and being able to let my guard down. whew! I don’t know how people do this for years, and not being able to alternate weeks. Perhaps it’s a little different having one’s own home to maintain as well, but either way … it is taxing. Even so, it is an honour and a blessing to be able to do this for one’s loved one, regardless of the difficulty as conditions worsen. Further to that, it’s not really understood that there is even a problem. Challenging.

So, how do we do it? To be honest, The Lord is our Strength. Prayer, talking to other people who understand, getting those little blocks of time out of the house or just being able to read or work at a hobby while a nap is happening .. usually not our own :) .. all are very important in order to keep one’s sanity. Another top thing is that our families are understanding and very supportive in this. I doubt that we could do it otherwise. So, really .. the wheel that turns it all is LOVE.

I originally set up this blog to track my journey in writing. Why do my journeys seem to always have side roads? Do the sidetracks add to the well from which stories come? I’m hoping so. The novel I got well underway in 2010′s NaNoWriMo (refer to http://lynnadavidson.wordpress.com/nanowrimo-updates-2010/) has not been altered one bit since. Do I try to work more on it in NaNo 2011? I really want to finish it instead of starting something new yet. My hesitation is because I fear attempting NaNo this year would set me up for an incomplete. But gosh! If I keep putting it off I could be years .. or never! ..getting back to it.

How do people write, sometimes their best work, during times of stress?

It seems I still have much to learn about splitting my life in half while keeping hold of some measure of my established interests — and sanity.

Do you have a similar story to tell? How did or do you manage it?

Thanks for reading, and … Creative Musings!  :)

Have you come full circle yet?

Do you ever feel that life is taking off without you? That you can’t keep up with all that is in your line of vision? It is times like those that I realize I could not hold up without the strength the Lord gives me.

I am delighted that our youngest daughter moved home in March, and so is her little dog – as much as a dog can be delighted. :) Now she is job searching so that she can get herself established again. Having her home will be helpful.

What is upcoming for us as a family is that we have come full circle, my husband and I. Several years ago, my sister and I lived with our parents again for the last month of our mother’s life when she was dying of cancer.  We each moved back into our old rooms which allowed us to be there to spend time with Mum and minister to her however we could, and to support our father. (My sister’s husband would bring their baby some days, and each evening I would go home to have supper with my family and put our youngest to bed before going back to my parents’.) This month my sister and I will be starting a rotation of living with Dad, alternating weeks for as long as is manageable. We will be companions to Dad more than caregivers in the way it is most understood. This time it is a sacrifice that will affect our own households for an indefinite length of time, but it is the only right decision at this time as he needs someone there with him. We don’t live far from him anyway, but it is time to do this. And Dad won’t be overwhelmed by us — :)   — because we won’t both be there all the time, but taking turns week by week.

To be honest with you, in considering all this it is something that I want to do and do not want to do. Even though I want to be there for my elderly father, I know it is going to change my own life, marriage, home. I will do this, though, because my family supports me in it and I love my dad – otherwise it would be nearly impossible. Do you know the feeling? It will be a good challenge, very important to our relationship and with fun potential. :)

During our quiet evenings, since Dad is still able to enjoy his own reading time, I plan to read more books, prepare more book reviews, and finish writing my novel and picture books. Then the weeks I am home I can post to my blog and catch up wherever else I have fallen behind.

Yes, that is the plan. A good plan. A reasonable plan. I’ll soon find out how well it works.

Have you come full circle yet, becoming the caregiver for the one who cared for you?

Maybe you are caregiver for someone else you love, or are available to give someone else a break? (Being a caregiver can be very stressful and exhausting, so if you are considering helping someone who does this, I’m sure they would appreciate a few hours for themselves each week.)

I’m very interested in hearing your stories.

Thanks for reading, and … Creative Musings!  :)

 

 

Day 10: NaNoWriMo & PiBoIdMo

I could get discouraged if I looked only at how little I have been writing of my word challenge each day this week .  But, in general I am writing more than ever before, so that is where I have to focus  — write something every day and reach the goal.  :)

For Day 10 (Wednesday) of NaNoWriMo I wrote 645 words.  My characters are leading the story, I’m just writing it out.  Interesting how that is happening.  I’m about 4000 words behind where I should be, though, not counting Thursday when this update will actually be posted.  But I’m not stressing over it, just sayin’.

The ideas were flowing for PiBoIdMo today, though.  I got four ideas, one in particular I really like and which was inspired by Remembrance Day and my dad – a WWII Veteran.

It was a very cool and windy day, not a day that encouraged me to leave my warm house, but tonight I went to the Alzheimer’s support group meeting that is held once a month.  This is the second one I attended for the time of sharing and listening to others facing that dread disease in someone they love.

I am very thankful to the Lord for His strength and encouragement.

Anything you are facing that is relieved by writing?

Thanks for reading, and … Creative Musings!  :)